Automated Author Profile

Pellegrini Mariangela

ERN EuroBloodNet

Current S-Index

0.8

Sum of Dataset Indices for all datasets

Average Dataset Index per Dataset

0.4

Average Dataset Index per dataset

Total Datasets

2

Total datasets for this author

Average FAIR Score

79.8%

Average FAIR Score per dataset

Total Citations

0

Total citations to the author's datasets

Total Mentions

0

Total mentions of the author's datasets

S-Index Interpretation

S-Index Over Time

Cumulative Citations Over Time

Cumulative Mentions Over Time

Datasets

ERICA PROMs Repository (Version: First version)

The ERICA Patient Reported Outcome Measures (PROMs) Repository is the first attempt to identify and centralize Clinical Assessment Outcomes questionnaires of relevance for rare diseases and constitutes a milestone in the Europe-wide standardization of Patient-Centered Outcome Measures (PCOMs) and PROMs for rare diseases. It has been made possible through the joint collaboration between Orphanet, Mapi Research Trust/ICON and ERN EuroBloodNet (VHIR, APHP), and the active contribution of ERNs and ePAGs. Available at ERICA website: ERICA PROMs Repository

Authors

  • Desvignes-Gleizes Céline ;
  • Benoit, Arnould ;
  • Mañú, Pereira Mar ;
  • Pellegrini Mariangela ;
  • Mc Donough Gavin ;
  • Bothorel Sonia ;
  • Ana, Rath
0 Citations0 Mentions81% FAIR0.4 Dataset Index
10.5281/zenodo.72778872022

ERICA PROMs Repository (Version: First version)

The ERICA Patient Reported Outcome Measures (PROMs) Repository is the first attempt to identify and centralize Clinical Assessment Outcomes questionnaires of relevance for rare diseases and constitutes a milestone in the Europe-wide standardization of Patient-Centered Outcome Measures (PCOMs) and PROMs for rare diseases. It has been made possible through the joint collaboration between Orphanet, Mapi Research Trust/ICON and ERN EuroBloodNet (VHIR, APHP), and the active contribution of ERNs and ePAGs. Available at ERICA website: ERICA PROMs Repository

Authors

  • Desvignes-Gleizes Céline ;
  • Benoit, Arnould ;
  • Mañú, Pereira Mar ;
  • Pellegrini Mariangela ;
  • Mc Donough Gavin ;
  • Bothorel Sonia ;
  • Ana, Rath
0 Citations0 Mentions79% FAIR0.4 Dataset Index
10.5281/zenodo.72778862022